Life without bladder control
Xu received seven or eight months of in-patient care and physical therapy after returning to Taiwan, then had to confront an entirely new set of challenges once he was discharged.
In his first week back at home, he woke up every morning in a puddle of urine. No matter how he wore them, adult diapers just didn’t work. He also struggled with getting to and from the hospital and clinics on a bus for the disabled. Transportation turned treatment into an all-day affair that left him completely exhausted by the time he got home again.
Xu overcame his challenges one by one, in the process transforming his attitude from one of “Why me?” to the much more practical “What do I need to do now?”
“Everything I could learn to do for myself meant one less thing my wife had to do.” Nine months after his accident, his wife felt comfortable enough with his progress to return to work.
Bathing and relieving himself continue to be a problem that takes an hour and a half out of every day. He jokes that he has to visit the toilet every three and a half hours to avoid a “flood.”
Even so, Xu remains upbeat not just about his difficulties using the bathroom, but also about the challenges of his “death sentence.” An experienced proffesor of physical therapy had told Xu he was unlikely to ever stand or walk again, but he’s already taken his first steps.
Three or four weeks after his injury, he began to feel like he was floating when his wife was lifting him into a sitting position. He slowly started regaining the ability to move his pelvis, then later to kneel and stand. Still later, he was able to take a step by using a support and really exerting himself. One day roughly 20 months after his injury, Xu was able to strap a pair of custom-made braces onto his atrophied legs and begin walking. With the help of his braces and a walker he can now move at a slow walk for as much as an hour.
In spite of his rapid recovery, Xu still struggles with intermittent neuropathic pain that can bring him to tears.
Because his brain doesn’t receive signals from the nerves in the lower part of his body, bodily sensations are transmitted only erratically and may be interpreted as cold, heat, or prickling sensations.
“The pain feels like someone is tugging and tugging on my left big toe,” says Xu. At first, his medications offered no relief from these maddening neuropathic pains, and he simply prayed. Fortunately, his doctor eventually found a drug that helped.
“I’m willing to bear this cross and follow you. Show me how to stand on my own two feet.” After his traumatic injury, Dr. Joshua Xu sought strength through prayer.